Cure Sanfilippo Foundation

A Close Look at Sanfilippo

Scopri la missione della Cure Sanfilippo Foundation e come puoi supportare chi è colpito dalla sindrome di Sanfilippo e diffondere consapevolezza sui social media.

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New Sanfilippo drug repurposing clinical trial; updates on other research + more

S1 E12 • 8 mins • Nov 8, 2022

Episodi recenti

Nov 8, 2022

New Sanfilippo drug repurposing clinical trial; updates on other research + more

S1 E12 • 8 mins

Mar 28, 2022

WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more

S1 E11 • 9 mins

Jan 26, 2022

Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more

S1 E10 • 10 mins

Dec 20, 2021

Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more

S1 E9 • 11 mins

Nov 16, 2021

BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more

S1 E8 • 13 mins

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