このポッドキャストは、遺伝性血管浮腫に影響を受けた若者たちのストーリーを紹介し、個人的な経験や擁護を通じてコミュニティ内での意識とつながりを育むことを目的としています。
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
S5 E9 • 22 mins • May 1, 2025
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最近のエピソード
May 1, 2025
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
S5 E9 • 22 mins
Mar 4, 2025
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#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler
S5 E7 • 9 mins
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#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra
S5 E6 • 10 mins
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#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
S5 E5 • 11 mins
