EURORDIS

Rare on Air

Questo podcast mette in evidenza storie personali di individui che affrontano malattie rare, presentando conversazioni con sostenitori ed esperti per far luce sui loro percorsi e successi.

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Tomasz Grybek on patient involvement and making lived experience count in regulatory decisions

35 mins • Jul 3, 2025

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Episodi recenti

Jul 3, 2025

Tomasz Grybek on patient involvement and making lived experience count in regulatory decisions

35 mins

Apr 1, 2025

Nick Sireau on patient-driven scientific breakthroughs and drug repurposing

33 mins

Feb 26, 2025

Rare Disease Day: Noah's story

8 mins

Feb 19, 2025

Rare Disease Day: Eden's story

4 mins

Feb 12, 2025

Rare Disease Day: Huy's story

5 mins

Lingua
Inglese
Paese
Stati Uniti
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Sito web
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