Fique por dentro das novidades sobre a Síndrome de Prader-Willi com o PWS United. Conecte-se com especialistas, famílias e cuidadores para fortalecer a comunidade.
Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
E30 • 38 mins • Feb 25, 2025
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Episódios recentes

Feb 25, 2025
Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
E30 • 38 mins

Feb 18, 2025
Ep 29: Pioneers in PWS - Residential Care and the Professional Providers Advisory Board
E29 • 54 mins

Feb 11, 2025
Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
E28 • 39 mins

Feb 4, 2025
Ep27: Advocacy with Terry Wilcox from Patients Rising
E27 • 47 mins

Jan 28, 2025
Ep26: Clinical Trial Perspectives Part 1
E26 • 50 mins

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