Emily Beauclair
Smiles Included: Navigating through life with our rare disease superheroes
Dieser Podcast teilt bewegende Geschichten und wertvolle Einblicke für Familien mit seltenen Krankheiten. Werden Sie Teil einer unterstützenden Gemeinschaft und finden Sie Wege, gemeinsam zu wachsen.
Cynthia Lang: Inspiring Progress in SKDEAS Research & Treatments
S3 E1 • 29 mins • Sep 10, 2024
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Neueste Folgen
Sep 10, 2024
Cynthia Lang: Inspiring Progress in SKDEAS Research & Treatments
S3 E1 • 29 mins
Mar 29, 2024
Dr. Thomas Frazier and Katie Huba: Groundbreaking research to understand the cognitive and behavioral patterns of WDR26 patients
32 mins
Nov 29, 2023
Laura Johansen: Triumphs, Challenges, and Hope in Raising a Rare Child
S2 E2 • 62 mins
Aug 17, 2023
Jackie and Eddy Jones: A rare disease journey of hope, resilience and vulnerability.....and a golf tournament!
S2 E1 • 65 mins
May 16, 2023
Allison Pyer: Unraveling the Complexities of the Neurotypical-Neurodiverse Connection
S1 E12 • 51 mins
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