Smiles Included: Navigating through life with our rare disease superheroes

Este podcast oferece histórias comoventes e insights de especialistas para famílias afetadas por doenças raras. Junte-se a uma comunidade de apoio e explore maneiras de prosperar juntos.

Episódios recentes

Sep 10, 2024

Cynthia Lang: Inspiring Progress in SKDEAS Research & Treatments

S3 E1 • 29 mins

Mar 29, 2024

Dr. Thomas Frazier and Katie Huba: Groundbreaking research to understand the cognitive and behavioral patterns of WDR26 patients

32 mins

Nov 29, 2023

Laura Johansen: Triumphs, Challenges, and Hope in Raising a Rare Child

S2 E2 • 62 mins

Aug 17, 2023

Jackie and Eddy Jones: A rare disease journey of hope, resilience and vulnerability.....and a golf tournament!

S2 E1 • 65 mins

May 16, 2023

Allison Pyer: Unraveling the Complexities of the Neurotypical-Neurodiverse Connection

S1 E12 • 51 mins