Emily Beauclair
Smiles Included: Navigating through life with our rare disease superheroes
Questo podcast offre storie toccanti e approfondimenti di esperti per le famiglie colpite da malattie rare. Unisciti a una comunità di supporto ed esplora modi per prosperare insieme.
Cynthia Lang: Inspiring Progress in SKDEAS Research & Treatments
S3 E1 • 29 mins • Sep 10, 2024
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Episodi recenti

Sep 10, 2024
Cynthia Lang: Inspiring Progress in SKDEAS Research & Treatments
S3 E1 • 29 mins

Mar 29, 2024
Dr. Thomas Frazier and Katie Huba: Groundbreaking research to understand the cognitive and behavioral patterns of WDR26 patients
32 mins

Nov 29, 2023
Laura Johansen: Triumphs, Challenges, and Hope in Raising a Rare Child
S2 E2 • 62 mins

Aug 17, 2023
Jackie and Eddy Jones: A rare disease journey of hope, resilience and vulnerability.....and a golf tournament!
S2 E1 • 65 mins

May 16, 2023
Allison Pyer: Unraveling the Complexities of the Neurotypical-Neurodiverse Connection
S1 E12 • 51 mins

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