Esplora storie toccanti di famiglie che affrontano rari disturbi di glicosilazione. Unisciti a conversazioni con ricercatori ed esperti sanitari che illuminano queste sfide.
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
S1 E8 • 61 mins • Oct 10, 2024
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Oct 10, 2024
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
S1 E8 • 61 mins
![](https://files.podcastos.com/shows/ufh43t/jpeg256-5eedde8d.jpg)
May 4, 2024
CDGCare: a story of family, advocacy and awareness
43 mins
![](https://files.podcastos.com/shows/ufh43t/jpeg256-5eedde8d.jpg)
Apr 18, 2024
GMPPA-CDG: A Cure Odyssey
S1 E6 • 85 mins
![](https://files.podcastos.com/shows/ufh43t/jpeg256-5eedde8d.jpg)
Dec 20, 2023
Aussie Louis and the Science of CDG Biomarkers
S1 E5 • 90 mins
![](https://files.podcastos.com/shows/ufh43t/jpeg256-5eedde8d.jpg)
Dec 4, 2023
Trailer - Aussie Louis and the Science of CDG Biomarkers
S1 E5 • 2 mins
![](https://files.podcastos.com/shows/ufh43t/jpeg-fefb9f26.jpg)
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