Explore heartfelt stories from families dealing with rare glycosylation disorders. Join conversations with researchers and healthcare experts shedding light on these challenges.
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
S1 E8 • 61 mins • Oct 10, 2024
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Recent Episodes
Oct 10, 2024
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
S1 E8 • 61 mins
May 4, 2024
CDGCare: a story of family, advocacy and awareness
43 mins
Apr 18, 2024
GMPPA-CDG: A Cure Odyssey
S1 E6 • 85 mins
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Aussie Louis and the Science of CDG Biomarkers
S1 E5 • 90 mins
Dec 4, 2023
Trailer - Aussie Louis and the Science of CDG Biomarkers
S1 E5 • 2 mins
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