Diese Serie zeigt die Geschichten von Familien mit seltenen genetischen Erkrankungen und betont ihre Herausforderungen, Erfolge und die Stärke der Gemeinschaft.
Nicole Ciccone, Mom to Syngapian Jackson, shares heartfelt stories about Jackson's accidental diagnosis, advocating for our children, and treasuring small milestones in their lives.
E35 • 38 mins • Jul 1, 2025
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Neueste Folgen
Jul 1, 2025
Nicole Ciccone, Mom to Syngapian Jackson, shares heartfelt stories about Jackson's accidental diagnosis, advocating for our children, and treasuring small milestones in their lives.
E35 • 38 mins
Jun 5, 2025
Jo Ashline, writer & SRF Volunteer, shares some advice as the Mom of an adult Syngapian, 23-yo Andrew.
E34 • 63 mins
Apr 8, 2025
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins
Mar 18, 2025
Kathryn Helde, SRF's CSO and SYNGAP1 Mom talks about her adult son Joey, genetic testing, hippotherapy, and Joey's words!
E32 • 48 mins
Feb 18, 2025
Chelsey and Anthony Navarro, SRF's Science Writer and Resource Mobilization Director (resp.), talk about daughter Emmy, grieving, preparing for the future, and expanding your community.
E31 • 54 mins
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Englisch
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