Découvrez des histoires émouvantes de familles et de soignants touchés par les troubles SYNGAP1. Cette série partage des expériences personnelles, des connaissances et du soutien pour la communauté.
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins • Apr 8, 2025
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Épisodes récents
Apr 8, 2025
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins
Mar 18, 2025
Kathryn Helde, SRF's CSO and SYNGAP1 Mom talks about her adult son Joey, genetic testing, hippotherapy, and Joey's words!
E32 • 48 mins
Feb 18, 2025
Chelsey and Anthony Navarro, SRF's Science Writer and Resource Mobilization Director (resp.), talk about daughter Emmy, grieving, preparing for the future, and expanding your community.
E31 • 54 mins
Dec 31, 2024
Zoe Bailey, SRF's Volunteer Coordinator, talks about finding SRF, volunteering, the SYNGAP1 conference and Zoe's daughter Kaia.
E30 • 47 mins
Nov 19, 2024
Stacey Miller, 2024 SYNGAP1 Conference Director, chats with new co-host Rainy Schlosser about the conference and Stacey's son, Jack.
E29 • 36 mins
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