アシュリーと一緒に、SYNGAP1関連障害に影響を受けた家族や専門家とつながり、心温まる物語、洞察、そしてコミュニティへのサポートを共有しましょう。
Zoe Bailey, SRF's Volunteer Coordinator, talks about finding SRF, volunteering, the SYNGAP1 conference and Zoe's daughter Kaia.
E30 • 47 mins • Dec 31, 2024
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最近のエピソード
Dec 31, 2024
Zoe Bailey, SRF's Volunteer Coordinator, talks about finding SRF, volunteering, the SYNGAP1 conference and Zoe's daughter Kaia.
E30 • 47 mins
Nov 19, 2024
Stacey Miller, 2024 SYNGAP1 Conference Director, chats with new co-host Rainy Schlosser about the conference and Stacey's son, Jack.
E29 • 36 mins
Apr 11, 2024
Rainy Schlosser, SYNGAP1 Mom to Hope, discusses her 4-year-old daughter's journey in life and across the US for 3 studies!
E28 • 43 mins
Mar 3, 2024
Jackie Kancir, SYNGAP1 Mom and Advocacy Leader for SRF talks about daughter Jadyne and shares advice for all rare disease parents.
E27 • 43 mins
Feb 13, 2024
Paulina Polanco, SRF volunteer and sibling to twin sisters with SYNGAP1 shares her very personal story of loss of what could have been, love, and hope.
E26 • 52 mins
