Questa serie toccante condivide le storie personali di famiglie colpite da rare malattie genetiche, evidenziando le loro sfide, i trionfi e la resilienza della comunità.
Virginie McNamar, CURE SYNGAP1's President & COO, talks with Rainy about Ty's 2016 Dx, dangerous elopement, benefit of Ty's service dog, and the upcoming CURE SYNGAP1 Conference in Atlanta
E38 • 47 mins • Oct 22, 2025
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Episodi recenti
Oct 22, 2025
Virginie McNamar, CURE SYNGAP1's President & COO, talks with Rainy about Ty's 2016 Dx, dangerous elopement, benefit of Ty's service dog, and the upcoming CURE SYNGAP1 Conference in Atlanta
E38 • 47 mins
Sep 3, 2025
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Nicole Ciccone, Mom to Syngapian Jackson, shares heartfelt stories about Jackson's accidental diagnosis, advocating for our children, and treasuring small milestones in their lives.
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E34 • 63 mins
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