Effie Parks

Once Upon A Gene

Unisciti a una conversazione sincera che condivide le esperienze di famiglie che affrontano sindromi genetiche rare. Scopri storie ispiratrici di resilienza e trionfo.

Listen on Apple Podcasts

Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp

E259 • 45 mins • Mar 20, 2025

Episodi recenti

Mar 20, 2025

Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp

E259 • 45 mins

Mar 6, 2025

How a Service Dog Helped a Child with CACNA1C-Related Disorder (Timothy Syndrome) Gain Independence – with Sue Bresnahan

E258 • 32 mins

Feb 27, 2025

Unlocking Rare Disease Diagnoses with PacBio’s Long-Read Sequencing – A Conversation with CEO Christian Henry

34 mins

Feb 20, 2025

Prioritizing Caregiver Health: Gut Health, Stress, and Sustainable Wellness for Parents of Kids with Disabilities – with Integrative Health Practitioner & CTNNB1 Mom, Fraser Bridgeman

45 mins

Jan 30, 2025

Breaking the Silence: Growing Up with Sickle Cell, Facing Pain, and Finding Strength Through Advocacy with James Griffin

E255 • 33 mins

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