Unisciti a una conversazione sincera che condivide le esperienze di famiglie che affrontano sindromi genetiche rare. Scopri storie ispiratrici di resilienza e trionfo.
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency
33 mins • May 15, 2025
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Episodi recenti

May 15, 2025
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency
33 mins

May 1, 2025
GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman
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Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp
E259 • 45 mins

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