Effie Parks

Once Upon A Gene

Únete a una conversación conmovedora que comparte las experiencias de familias que navegan por síndromes genéticos raros. Descubre historias inspiradoras de resiliencia y triunfo.

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Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.

53 mins • Mar 27, 2025

Episodios recientes

Mar 27, 2025

Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.

53 mins

Mar 20, 2025

Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp

E259 • 45 mins

Mar 6, 2025

How a Service Dog Helped a Child with CACNA1C-Related Disorder (Timothy Syndrome) Gain Independence – with Sue Bresnahan

E258 • 32 mins

Feb 27, 2025

Unlocking Rare Disease Diagnoses with PacBio’s Long-Read Sequencing – A Conversation with CEO Christian Henry

34 mins

Feb 20, 2025

Prioritizing Caregiver Health: Gut Health, Stress, and Sustainable Wellness for Parents of Kids with Disabilities – with Integrative Health Practitioner & CTNNB1 Mom, Fraser Bridgeman

45 mins

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