Únete a una conversación conmovedora que comparte las experiencias de familias que navegan por síndromes genéticos raros. Descubre historias inspiradoras de resiliencia y triunfo.
Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.
53 mins • Mar 27, 2025
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- 195Increased by 4
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- 200Decreased by 22
- 196Decreased by 37
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Episodios recientes

Mar 27, 2025
Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.
53 mins

Mar 20, 2025
Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp
E259 • 45 mins

Mar 6, 2025
How a Service Dog Helped a Child with CACNA1C-Related Disorder (Timothy Syndrome) Gain Independence – with Sue Bresnahan
E258 • 32 mins

Feb 27, 2025
Unlocking Rare Disease Diagnoses with PacBio’s Long-Read Sequencing – A Conversation with CEO Christian Henry
34 mins

Feb 20, 2025
Prioritizing Caregiver Health: Gut Health, Stress, and Sustainable Wellness for Parents of Kids with Disabilities – with Integrative Health Practitioner & CTNNB1 Mom, Fraser Bridgeman
45 mins

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