Únete a una conversación conmovedora que comparte las experiencias de familias que navegan por síndromes genéticos raros. Descubre historias inspiradoras de resiliencia y triunfo.
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency
33 mins • May 15, 2025
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Episodios recientes

May 15, 2025
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency
33 mins

May 1, 2025
GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman
33 mins

Apr 18, 2025
Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman
34 mins

Mar 27, 2025
Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.
53 mins

Mar 20, 2025
Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp
E259 • 45 mins

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