Effie Parks

Once Upon A Gene

Join a heartfelt conversation that shares the experiences of families navigating rare genetic syndromes. Discover inspiring stories of resilience and triumph.

Listen on Apple Podcasts

A Rare Collection - Rare Disease Storytelling with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point

25 mins • Jun 12, 2025

Recent Episodes

Jun 12, 2025

A Rare Collection - Rare Disease Storytelling with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point

25 mins

Jun 5, 2025

Finding Joy in the Journey: A Guide for Parents of Medically Complex Kids with Amber Pierson & Chelsea Kuhn

43 mins

May 15, 2025

From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency

33 mins

May 1, 2025

GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman

33 mins

Apr 18, 2025

Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman

34 mins

Language
English
Country
United States
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