Effie Parks

Once Upon A Gene

Join a heartfelt conversation that shares the experiences of families navigating rare genetic syndromes. Discover inspiring stories of resilience and triumph.

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From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency

33 mins • May 15, 2025

Recent Episodes

May 15, 2025

From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency

33 mins

May 1, 2025

GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman

33 mins

Apr 18, 2025

Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman

34 mins

Mar 27, 2025

Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.

53 mins

Mar 20, 2025

Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp

E259 • 45 mins

Language
English
Country
United States
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