Effie Parks

Once Upon A Gene

希少遺伝子症候群に取り組む家族の経験を共有する心温まる会話に参加してください。レジリエンスと勝利の感動的な物語を発見しましょう。

Listen on Apple Podcasts

最近のエピソード

Nov 27, 2024

Grateful Reflections for Epilepsy Awareness Month: Parents Share Love, Lessons, and Insights from the Dravet Syndrome Community

E249 • 157 mins

Nov 14, 2024

Ready for Take Off: Mission for Accessible Air Travel & Disability Advocacy, with Mindy Henderson

E248 • 37 mins

Oct 31, 2024

The Unique Expertise of a Genetic Counselor - Helping Rare Disease Individuals and Families Navigate Through Complex Emotions and Circumstances Like Guilt, Grief, and Shame with Mary-Frances Garber

E248 • 41 mins

Oct 17, 2024

Hospital Survival Kit - Advocating for Your Child Without Losing Yourself

E247 • 24 mins

Oct 10, 2024

Real-World Self-Care for Caregivers - Tiny Wins, Small Shifts, and Taking Back Your Power

E246 • 18 mins

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