Effie Parks

Once Upon A Gene

希少遺伝子症候群に取り組む家族の経験を共有する心温まる会話に参加してください。レジリエンスと勝利の感動的な物語を発見しましょう。

Listen on Apple Podcasts

From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency

33 mins • May 15, 2025

最近のエピソード

May 15, 2025

From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency

33 mins

May 1, 2025

GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman

33 mins

Apr 18, 2025

Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman

34 mins

Mar 27, 2025

Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter.

53 mins

Mar 20, 2025

Reimagining Pediatric Healthcare: How Imagine Pediatrics is Revolutionizing In-Home Medical Care for Medically Complex Kids and Lightening the Load for Families - Taylor Beery and Jody Copp

E259 • 45 mins

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