希少遺伝子症候群に取り組む家族の経験を共有する心温まる会話に参加してください。レジリエンスと勝利の感動的な物語を発見しましょう。
Charts
- 164NEW
- 197Decreased by 25
- 43Decreased by 4
- 60Decreased by 1
最近のエピソード
Nov 27, 2024
Grateful Reflections for Epilepsy Awareness Month: Parents Share Love, Lessons, and Insights from the Dravet Syndrome Community
E249 • 157 mins
Nov 14, 2024
Ready for Take Off: Mission for Accessible Air Travel & Disability Advocacy, with Mindy Henderson
E248 • 37 mins
Oct 31, 2024
The Unique Expertise of a Genetic Counselor - Helping Rare Disease Individuals and Families Navigate Through Complex Emotions and Circumstances Like Guilt, Grief, and Shame with Mary-Frances Garber
E248 • 41 mins
Oct 17, 2024
Hospital Survival Kit - Advocating for Your Child Without Losing Yourself
E247 • 24 mins
Oct 10, 2024
Real-World Self-Care for Caregivers - Tiny Wins, Small Shifts, and Taking Back Your Power
E246 • 18 mins