SYNGAP1に関連する障害に影響を受けた家族や専門家との心温まる会話に参加してください。エピソードごとに、回復力、希望、そしてコミュニティのサポートの物語を発見しましょう。
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins • Apr 8, 2025
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- 171Decreased by 29
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- 171Decreased by 25
最近のエピソード
Apr 8, 2025
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins
Mar 18, 2025
Kathryn Helde, SRF's CSO and SYNGAP1 Mom talks about her adult son Joey, genetic testing, hippotherapy, and Joey's words!
E32 • 48 mins
Feb 18, 2025
Chelsey and Anthony Navarro, SRF's Science Writer and Resource Mobilization Director (resp.), talk about daughter Emmy, grieving, preparing for the future, and expanding your community.
E31 • 54 mins
Dec 31, 2024
Zoe Bailey, SRF's Volunteer Coordinator, talks about finding SRF, volunteering, the SYNGAP1 conference and Zoe's daughter Kaia.
E30 • 47 mins
Nov 19, 2024
Stacey Miller, 2024 SYNGAP1 Conference Director, chats with new co-host Rainy Schlosser about the conference and Stacey's son, Jack.
E29 • 36 mins
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