Hören Sie monatlich Gespräche mit Menschen, die an seltenen Erkrankungen leiden, und erhalten Sie Einblicke von Wissenschaftlern. Verbinden Sie sich mit der seltenen Gemeinschaft.
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins • Jan 3, 2025
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Neueste Folgen
Jan 3, 2025
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins
Dec 9, 2024
“When numbness of the hands is a window to the heart,” Charles is living with Transthyretin amyloidosis cardiomyopathy (ATTR-CM).
E34 • 34 mins
Oct 29, 2024
“You can do everything that you want to do.” Erin is living with hypochondroplasia.
E33 • 40 mins
Oct 3, 2024
“I have 2I, but I am not 2I.” Misty’s Journey Living With LGMD2I/R9
E32 • 45 mins
Aug 12, 2024
“They told me to go home and love my child” Dawn’s daughter Vayle is living with Canavan Disease.
E31 • 35 mins
Sprache
Englisch
Land
Uruguay
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Website
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