Sintonize-se mensalmente para discussões emocionantes com indivíduos que enfrentam condições raras e percepções de cientistas. Junte-se à conversa e conecte-se com a comunidade rara.
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins • Jan 3, 2025
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- 154Decreased by 31
Episódios recentes
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Jan 3, 2025
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins
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Dec 9, 2024
“When numbness of the hands is a window to the heart,” Charles is living with Transthyretin amyloidosis cardiomyopathy (ATTR-CM).
E34 • 34 mins
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Oct 29, 2024
“You can do everything that you want to do.” Erin is living with hypochondroplasia.
E33 • 40 mins
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Oct 3, 2024
“I have 2I, but I am not 2I.” Misty’s Journey Living With LGMD2I/R9
E32 • 45 mins
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Aug 12, 2024
“They told me to go home and love my child” Dawn’s daughter Vayle is living with Canavan Disease.
E31 • 35 mins
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