毎月、希少な病気に直面している人々との心温まる対話や科学者からの洞察をお楽しみください。この会話に参加して、希少なコミュニティとつながりましょう。
On Rare Innovators: Carmen Alonso and the Founding of ALPE - "The Love You Give, You Receive Back"
E41 • 42 mins • Oct 10, 2025
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最近のエピソード

Oct 10, 2025
On Rare Innovators: Carmen Alonso and the Founding of ALPE - "The Love You Give, You Receive Back"
E41 • 42 mins

Sep 4, 2025
“I’m still very grateful for the life that I’ll have.” Cerys is living with Limb-Girdle Muscular Dystrophy type 2I/R9
E40 • 39 mins

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“We just thought we were clumsy”. Katie and Allie are living with late-onset Tay-Sachs disease
E38 • 40 mins

Mar 25, 2025
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR)
E37 • 40 mins
