毎月、希少な病気に直面している人々との心温まる対話や科学者からの洞察をお楽しみください。この会話に参加して、希少なコミュニティとつながりましょう。
“It’s important to stay connected” Daniel is living with Tuberous Sclerosis Complex (TSC)
E39 • 30 mins • Jun 26, 2025
Charts
- 86Increased by 80
- 67Decreased by 13
- 86NEW
- 44Increased by 54
- 199Increased by 1
最近のエピソード

Jun 26, 2025
“It’s important to stay connected” Daniel is living with Tuberous Sclerosis Complex (TSC)
E39 • 30 mins

Apr 25, 2025
“We just thought we were clumsy”. Katie and Allie are living with late-onset Tay-Sachs disease
E38 • 40 mins

Mar 25, 2025
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR)
E37 • 40 mins

Feb 18, 2025
“There’s always somebody to fight for.” Kady’s son Julien is living with Autosomal Dominant Hypocalcemia Type 1 (ADH1)
E36 • 42 mins

Jan 3, 2025
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins