Sintoniza mensualmente para conversaciones sinceras con personas que enfrentan condiciones raras y perspectivas de científicos. Únete a la conversación y conéctate con la comunidad rara.
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR)
E37 • 40 mins • Mar 25, 2025
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Episodios recientes

Mar 25, 2025
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR)
E37 • 40 mins

Feb 18, 2025
“There’s always somebody to fight for.” Kady’s son Julien is living with Autosomal Dominant Hypocalcemia Type 1 (ADH1)
E36 • 42 mins

Jan 3, 2025
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins

Dec 9, 2024
“When numbness of the hands is a window to the heart,” Charles is living with Transthyretin amyloidosis cardiomyopathy (ATTR-CM).
E34 • 34 mins

Oct 29, 2024
“You can do everything that you want to do.” Erin is living with hypochondroplasia.
E33 • 40 mins

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