Tune in monthly for heartfelt discussions with individuals facing rare conditions and insights from scientists. Join the conversation and connect with the rare community.
“We just thought we were clumsy”. Katie and Allie are living with late-onset Tay-Sachs disease
E38 • 40 mins • Apr 25, 2025
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Recent Episodes

Apr 25, 2025
“We just thought we were clumsy”. Katie and Allie are living with late-onset Tay-Sachs disease
E38 • 40 mins

Mar 25, 2025
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR)
E37 • 40 mins

Feb 18, 2025
“There’s always somebody to fight for.” Kady’s son Julien is living with Autosomal Dominant Hypocalcemia Type 1 (ADH1)
E36 • 42 mins

Jan 3, 2025
Another year of incredible conversations! On Rare celebrates our 2024 rare guests!
E35 • 37 mins

Dec 9, 2024
“When numbness of the hands is a window to the heart,” Charles is living with Transthyretin amyloidosis cardiomyopathy (ATTR-CM).
E34 • 34 mins

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