Únete a conversaciones conmovedoras con familias y expertos afectados por trastornos relacionados con SYNGAP1. Descubre historias de resiliencia, esperanza y apoyo comunitario en cada episodio.
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins • Apr 8, 2025
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- 171Decreased by 29
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- 171Decreased by 25
Episodios recientes
Apr 8, 2025
Eric Moulton, SRF Board Member and SYNGAP1 Dad, talks about Phoebe, schools, receiving her diagnosis, raising $60,000+ for Sprint4Syngap, and more!
E33 • 41 mins
Mar 18, 2025
Kathryn Helde, SRF's CSO and SYNGAP1 Mom talks about her adult son Joey, genetic testing, hippotherapy, and Joey's words!
E32 • 48 mins
Feb 18, 2025
Chelsey and Anthony Navarro, SRF's Science Writer and Resource Mobilization Director (resp.), talk about daughter Emmy, grieving, preparing for the future, and expanding your community.
E31 • 54 mins
Dec 31, 2024
Zoe Bailey, SRF's Volunteer Coordinator, talks about finding SRF, volunteering, the SYNGAP1 conference and Zoe's daughter Kaia.
E30 • 47 mins
Nov 19, 2024
Stacey Miller, 2024 SYNGAP1 Conference Director, chats with new co-host Rainy Schlosser about the conference and Stacey's son, Jack.
E29 • 36 mins
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