Explore personal stories from the GNE Myopathy community, featuring patients, caregivers, and experts sharing insights and support for those affected by this rare condition.
NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
E12 • 45 mins • Sep 20, 2022
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Recent Episodes

Sep 20, 2022
NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
E12 • 45 mins

Sep 19, 2022
NDF Talks: Planning The Future With Dr. Shahin Ghadir & NDF Emotional Wellness Director Carol Gelbard, LSCW
E11 • 24 mins

Jul 26, 2021
NDF Talks: Breaking the Taboo of Disability
E10 • 35 mins

May 27, 2021
NDF Talks: The Problems With Ableism In Our Culture
E9 • 18 mins

Apr 16, 2021
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021
E8 • 14 mins

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