Tune in weekly for an honest look at the highs and lows of parenting a child with a rare disease, sharing heartfelt stories and relatable experiences.
Life Lately: Solo Parenting, Sick Kids, & School Plans
E63 • 30 mins • May 28, 2025
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Recent Episodes

May 28, 2025
Life Lately: Solo Parenting, Sick Kids, & School Plans
E63 • 30 mins

May 7, 2025
Creative Fundraising in the Rare Disease Community – Global Genes Panel Recording
E62 • 67 mins

Apr 23, 2025
Life Lately: A Rare Mama Catch-Up
E61 • 32 mins

Mar 5, 2025
Navigating Resources and Grants with Advocacy Abby
E60 • 59 mins

Jan 29, 2025
Real Food Blended Diets Made Simple: A Conversation with Registered Dietitian Hilarie Geurink
E59 • 62 mins

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